April 19, 2023

Support Groups for Prostate Cancer Patients and Their Loved Ones

Support Groups for Prostate Cancer Patients and Their Loved Ones

It can be scary and overwhelming dealing with all the questions, options, and uncertainty that come with a prostate cancer diagnosis. You may even feel like no one knows what you’re going through. It’s important to know that you are not alone.

One in eight men will be diagnosed with prostate cancer, affecting not only the patient, but also friends, family, and caregivers. There are a number of advocacy and support groups that provide credible information, practical help, and a sense of hope through community.

Learn about some of the support groups that can help you feel less isolated and more confident.

ZEROProstate Cancer

In 1996, inspired by the National Breast Cancer Coalition, patie

nts, physicians, and advocates came together to form the National Prostate Cancer Coalition—now known as ZERO Prostate Cancer. ZERO’s activities range from rallying support in Congress to offering free mobile prostate cancer screenings to addressing health disparity and equity issues.

ZERO’s website offers financial resources, lists opportunities to participate in research, and shares information specifically for Black men, Veterans, and the LGBTQIA+ community.

There are also peer support resources and a searchable database of support groups.

Facebook: https://www.facebook.com/ZeroProstateCancer
Twitter: https://twitter.com/zerocancer
Instagram: https://www.instagram.com/zeroprostatecancer
YouTube: https://www.youtube.com/@zeroprostatecancer
LinkedIn: https://www.linkedin.com/company/zeroprostatecancer

Prostate Cancer Foundation (PCF)

This year the Prostate Cancer Foundation (PCF) marks its 30th anniversary of funding prostate cancer research and providing support to those affected by the disease. Its website contains a wealth of patient resources, including educational guides, tips for adjusting to life with prostate cancer, and information on family cancer risk. PCF also hosts a number of private, moderated support groups on Facebook geared toward different interests and audiences:

Facebook: https://www.facebook.com/PCF.org
LinkedIn: https://www.linkedin.com/company/prostate-cancer-foundation/
Twitter: https://twitter.com/PCFnews


Malecare has been advocating for prostate cancer patients and survivors since 1998, when it created the first prostate cancer patient advocacy and support program for gay and bisexual people. It focuses on underrepresented populations, including African American, Native American, and Latino communities and transgender women with prostate cancer.

In 2002, Malecare began focusing on reducing the disparity of African American men dying of prostate cancer at twice the rate of Caucasian men, and their website includes the downloadable booklet “Prostate Cancer While Black.”

In 2011 Malecare founded the Global Prostate Cancer Alliance, which brings together prostate cancer organizations from around the world. They have extensive video resources via their YouTube channel.

Malecare hosts prostate cancer support groups for:

Facebook: https://www.facebook.com/Malecare/
LinkedIn: https://www.linkedin.com/company/malecare/about/
Twitter: https://twitter.com/prostatenews

National LGBT Cancer Project

The National LGBT Cancer Project was started by Malecare in 2005 and is the U.S.’s first LGBT cancer survivor support and advocacy group.

On the organization’s website, you can sign up for a virtual support group based on type of cancer and access the report “Moving On: Mental Health, Resilience and Sexual Recovery among Gay Men living with Prostate Cancer.”

Facebook: https://www.facebook.com/LGBTCancerProject

Twitter: https://twitter.com/LGBTCancer

National LGBT Cancer Network

The National LGBT Cancer Network aims to educate the LGBT community about cancer risks, train healthcare providers, and advocate for LGBT cancer survivors.

The organization has an active social media presence, and you can also sign up via their website for a virtual cancer peer-support group.

Facebook: https://www.facebook.com/nationalLGBTcancerNetwork/
LinkedIn: https://www.linkedin.com/company/national-lgbt-cancer-network/
Twitter: https://twitter.com/cancerLGBT

Fans for the Cure

Fans for the Cure was started in 2003 by NYC baseball announcer Ed Randall after he was diagnosed with the disease. Expanding from its initial awareness efforts at minor league baseball games, the organization now hosts screenings and health fairs year round.

It also holds semi-monthly online support groups: one for women, hosted by women, and one for men. In addition, Randall hosts the podcast Stay in the Game: Conversations about Prostate Cancer with Ed Randall.

Facebook: https://www.facebook.com/fans4thecure
LinkedIn: https://www.linkedin.com/company/fansforthecure
Twitter: https://twitter.com/fans4thecure
Instagram: https://www.instagram.com/fans4thecure

Man Cave Health

Man Cave Health is “focused on breaking the silence surrounding sensitive health topics for men,” raising prostate cancer awareness, and changing the landscape of men’s healthcare through a “Man Cave” patient care model.

The resources page on its website contains links to screening and prevention information and treatment options. For ongoing interaction with the group’s resources, join their virtual support group and sign up for their regular newsletter.

Facebook: https://www.facebook.com/ManCaveHealth/
Twitter: https://twitter.com/mancave_health
Instagram: https://www.instagram.com/mancave_health/
LinkedIn: https://www.linkedin.com/company/man-cave-health-inc/
YouTube: https://www.youtube.com/channel/UCzkcgrF76Bn1Zf_coX5SnIQ

Prostate Cancer Research Institute (PCRI)

PCRI is a nonprofit organization created in 1996 to help people know and research their options when it comes to prostate cancer care and treatment. Their YouTube channel hosts a number of informational videos, and their website, in addition to containing foundational information about prostate cancer, offers a helpline to answer specific questions and a state-by-state directory of support groups.

YouTube: https://www.youtube.com/thepcri
Facebook: https://www.facebook.com/thepcri
Instagram: https://www.instagram.com/thepcri/

While this is only a snapshot of the possible prostate cancer support groups to consider–there are many smaller, local and regional groups as well–these groups have a large and engaged audience and credible information. Finding a group that fits your needs can make a difficult ordeal more bearable, provide valuable peer support, and foster a sense of community–a safe space for honest conversation and expression. Always remember that you and your loved ones are not alone.